"Parenting a Dying Child" | Life After Menkes Diagnosis

Daniel DeFabio turned his personal tragedy into a mission to support others. After losing his son Lucas to Menkes syndrome at just 11 years old, Daniel dedicated himself to the rare disease community, now serving as the Director of Community Engagement for Global Genes. Learn about Lucas’s journey, from his premature birth to his brave fight with Menkes syndrome. Hear Daniel’s story of grief, resilience, and the milestones that marked Lucas's life.Discover how Daniel found purpose in advocacy, transforming his experience into a force for positive change in the rare disease community. Join us for an emotional and inspiring conversation about love, loss, and the power of turning personal pain into community strength. Don't forget to like, comment, and subscribe for more impactful stories. Find Daniel & His Impactful Work 🌟 https://globalgenes.org/blog/tell-your-story-daniel-defabiorare-dad-filmmaker-advocate/ https://tinyurl.com/5n6fjzay FIND HEATHER & JAKE'S HELP FROM HEAVEN ❤️ Heather's Instagram: https://www.instagram.com/heathersstraughter/ ❤️ Jake's Help from Heaven: http://jakeshelpfromheaven.org/ ❤️ Jake's Help from Heaven IG: https://www.instagram.com/jakeshelp/ ❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven ❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast Learn more about your ad choices. Visit megaphone.fm/adchoices