Dad to Dad 60 - Martin Cuevas of Crystal Lake, IL Father of Twin Girls Including One With Pitt Hopkins Syndrome

Dad to Dad Podcast - Podcast tekijän mukaan David Hirsch - Perjantaisin

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On this Dad to Dad podcast host David Hirsch talks to Martin Cuevas of Crystal Lake, IL. Martin and his wife, Amy have been married for 8 years and are the proud parents of twin 4 year old daughters, one of whom has Pitt Hopkins Syndrome, a rare genetic disorder characterized by intellectual disability and developmental delay, breathing problems, recurrent seizures (epilepsy), and distinctive facial features.We learn about Martin's career as a hospice caregiver and how the couple has shouldered the Pitt Hopkins diagnosis, and how close family makes their life much easier. That’s all on this SFN Dad to Dad Podcast.Email - [email protected] - https://www.linkedin.com/in/martincuevas/Pitt Hopkins Research Foundation - https://pitthopkins.org/ Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/

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